Saturday, October 24, 2020

My thoughts on The Affordable Care Act

The main definition of the Affordable Care Act is the federal legislation that extended health insurance coverage for uninsured individuals with low income.  The law was enacted in March, 2010 by President Barack Obama and the House of Representatives that helped millions of Americans gain access to healthcare coverage for many reasons. Also known as Obamacare, it has two major parts; the first is titled Patient Protection and Affordable Care Act, second is Health Care and Education Reconciliation Act. The act was designed to make affordable insurance more available and expand tax credits for people with pre-existing conditions.  It went into effect in 2014, mandated insurance companies to accept all applicants at no cost and individuals to  buy health insurance when they need it. The law improved the quality of healthcare by reducing income inequalities of uninsured individuals ranging from 20 to 40 million.  The amendment overhauled individual markets in the expansion of Medicaid and employer based insurance plans, which allowed individuals to pay the taxes as healthcare coverage increases. 

 

            The ACA is vital to various populations in need, such as poverty, the mentally ill, and those with disabilities.  Those who need long term healthcare are eligible for Medicaid related benefits that are essential to address their needs.  The ACA gained support of the majority to lower the cost of healthcare and make sure insurers don’t deny the applicant’s status before receiving the benefits. 

 

            Not everyone can afford healthcare if they are sick or need immediate medical assistance. The ACA gives people adequate access to affordable medications and therapy appointments.  Not having healthcare coverage can put them at risk of serious conditions that require hospitalization, long term care in nursing homes and intensive care facilities, and even death.  Coverage is always important to not only increase the affordability of certain types of care but also save people’s lives.  There are many individuals that receive treatment because of the ACA.  Since 2010, the Obama administrations worked on the law that resulted in the decline of mortality rates over three years.  The ACA implemented Obamacare programs to improve medical capacity on hospitalized patients.  Research suggests that there were approximately 1.3 million fewer deaths since the law went into effect.  The conclusions about the research on affordable healthcare stated that about 12 million dollars are saved in addition to the number of survivors suffering from disease. Examples of patient related problems included in the ACA are high blood pressure, drug addiction, and infectious diseases that limit their chances of survival. 

 

            Millions of Americans have already gotten affordable insurance under ACA, which has been successful in keeping them out of debt while eliminating medical expenses.  The factors that covered people under these provisions include financial aid for insurance premiums and subsidies to provide them access to resources through Medicaid.  However, it is possible that the law will be overturned by the Supreme Court that could result in further consequences for healthcare systems.  The ruling against the act might have multiple effects on coverage, but actually we don’t know yet what will happen if it changes at some point.  Some parts of the law may remain in place if not totally erased.  Everyone needs health insurance for a lifetime so their health needs can be met.  For instance, it is difficult to afford doctor visits and treatment without health insurance and it increases the risk of developing severe symptoms if people delay care due to cost.  The goal is to live healthy lives and have the freedom to support ourselves and others.  We need to continue to do our best to avoid losing healthcare and find new ways to securely bring back affordable insurance even if the ACA no longer exists. 

 

 

 

 

 

 

 

 


 

  

Sunday, October 4, 2020

My Life During Covid-19

 

Hi everyone! I want to share the story about the experiences of going through the troubling times throughout the global pandemic. I understand that it’s been a tough year for everybody and that many people all around the world are suffering. Because COVID-19 is one of the most dangerous and highly contagious diseases in my lifetime, avoiding catching it has been the only thing that I have really been doing since March, as we’re all put under lockdown measures to slow the spread of the virus. It’s challenging and insane. Millions of people worldwide got infected, however the government mandated wearing masks and social distancing in many states/territories to prevent it. So, I am updating the summary of what it’s like to live this way as a person with RTD. The story I’m telling will explain the important things people who are like me should do to keep themselves safe and healthy. I hope this information is helpful to give readers a better idea of accepting the terms of our lives during the pandemic. The summary provides the knowledge about the guidelines from the Centers for Disease Control and Prevention, and the challenges you all have faced.  This is important to understand and recognize the precautions against the virus. 

 

I have RTD Type 2 which means I’m at a higher risk and I was told that I must avoid being around others in public. The risk for catching the virus causes symptoms that are temporarily difficult to control over a short time. I usually remain at home almost everyday with my family so I don’t go anywhere without an important reason. If I have to leave the house, I just stay in the car outside public facilities while waiting for someone to return so I have to sit around and follow the precautions.  Wearing a mask doesn’t always work for me since I am a high risk person in which I have to be careful not to expose myself anything. So avoiding shopping, doctor appointments, or social gatherings for me is important unless its completely necessary. The only thing I go out is for food...especially drive-thru and carry-out. My family goes to pick up dinner every Friday night from each other’s’ favorite restaurants. It is a fun activity that has made the lockdown enjoyable. I feel isolated and bored when being stuck at home right now. But I am doing online classes and personal projects which has been going well and keeps me busy. I’m currently taking a class that introduces me to social work and offers opportunities to explore professional pathways to see what type of career I would be interested in someday. Before the pandemic I made plans to do volunteer work and find a summer internship for work experience that I had to cancel once it started. It messed up my goals for the year as a result of frustration and uncertainty about the future. It saddened me and I feel like it is creating a life that I have no control over.  The transition to a virtual world brought new challenges we have overcome because we are so used to being social and everybody is forced to separate from society. For me, because of RTD I spend most of the time online throughout the pandemic and am struggling with face-to-face interactions more than usual. I haven’t been able to see any of my friends in person for a long time, however it helps to write to them back and forth as often as possible since it’s the only way I can socialize safely. Believe me or not, the health and safety are the highest priority to take care of and go through these challenging times.

 

 While many people lost their jobs, my father is able to work remotely so he still gets paid to support my family.  The government is sending checks to those who are unemployed as a type of financial assistance many people are eligible for.  I think they are trying to make a new stimulus package come together for those who need it. The Republicans are fighting it so there isn’t any new help yet. You know how lucky I am to have family around? I turned 23 in March and still live at my parents’ house so I can still rely on physical assistance with my daily routine. I have an assistant who works for me four days a week to help me with my schoolwork and other things around the house. My younger brother started his junior year of high school recently, but classes are all online.  My sister and I both are college students doing the same and it’s absolutely a difficult way of learning. Schools and community centers in my county remain closed following the outbreak. Remote employment and learning are the best ways to avoid putting your health at risk, although it doesn’t sound like fun. Therefore, when some businesses reopened too soon it led to a spike of COVID-19 cases and that’s reckless behavior. That’s why I can’t go in the public to get the chances of catching the virus. Hopefully it will go away, however it will take time to get this under control. This is how life is for everyone as the pandemic flourishes.

The good news is that we live in a time where technology makes our situation a little easier.  There is fast internet available that allows us to access school, business media and networking. People have the option of ordering groceries online and then driving to pick them up. I found it slightly overwhelming when the situation changed and we were beginning a virtual experience to help prevent COVID-19, but I am getting used to it. In my free time I’ve been trying to relax, create my artwork, and practice drumming to cope with the troubling times.

 

The advice I have for you is to hang in there. Things will improve when the case rate declines and the world gets back to normal. I’m hoping scientists will find a vaccine to work against the virus and allow lockdowns to be lifted safely. After that I hope to restart my planning for the career and get ready to enter into the independent life.

 

Sunday, August 23, 2020

"Haben" - Book Review

I just finished reading a book about a deaf-blind woman named Haben Girma, who became the first deaf-blind person to graduate from Harvard Law School. Haben went through life with special challenges but was able to successfully adapt into the sighted/hearing world. She serves as an advocate for disability rights and her contributions to the disabled population are a huge influence on me. I found her life story inspiring and I would consider her as an example of how people with disabilities can be successful in a mainstream environment. The fact that Haben’s deaf-blindness doesn’t stop her from enjoying life and reaching her goals relates back to my own hopes and ideas I have about the future. Below is a summary of the book I read with specific details from my own life.

Haben was born on July 29, 1988, during the Eritrean war against Ethiopia. As she grew-up, she experienced the discoveries of what it means to be blind and believed that blindness isn’t a bad way to view the sighted world. 

In early years of her life, she was educated in a mainstream school where she learned to read and write in braille with assistive technology as well as the support from her vision teacher. The ability to gain the skills as a blind person led her to further academic progress. The school she attended had teachers who were trained to teach blind kids and give them helpful tools to succeed in all tasks. Her participation in the classroom was technically difficult since she couldn’t see or hear the teacher’s instructions on what everyone in class was expected to do. Haben relied on a translator to ask for homework assignments to complete to be sure she never fell behind. The way she communicates normally involves letting someone type what others say on a brallie computer. She did not have many friends in school, but was offered an opportunity to meet children at camp who were also blind. When she started summer camp, she made a best friend named Robin who understood her obstacles. They both joined a small group of campers and held a dance class together. 

As a teenager, Haben traveled to Mali with a nonprofit organization called BuildOn. While in there she did volunteer work to build a school. It provided her with confidence in knowing how to help others and making decisions on her own. During the discussion with her parents about her transition plans, they worried about her situation and felt that it wouldn’t be safe for her to go to college. Her solution was to contact someone from the National Federation for the Blind for advice on getting a service dog along with additional options for college. Upon graduation from high school, she attended the Louisiana Center for the Blind to develop independence skills through training. The instructors of the training program worked closely with her to learn the tools to succeed in college and work, such as cooking, operating the wood saw, and travel skills. The chance of physical injury when cutting herself and crossing the train track were a couple of the mistakes she made during training sessions. But with the guidance from instructors she was able to improve these skills by understanding when to seek. Haben stayed at LCB for six months and spent nights with a group of blind peers in an apartment setting. They all played hide-and-seek which Haben believes is fun to do for all blind kids. After she finished, she went on to the Lewis and Clark College in Portland, Oregon. College was her first experience of being independent. She was able to navigate the campus on her own with a cane and request accommodations from the disability support services, with braille-featured materials that she could access to course materials. She asked them to send her lunch menus in digital braille that were made accessible. They were copied and pasted on a computer file so Haben could read before deciding the meal. She developed good friendships with the fellow students on campus, especially her roommate and the people in the cafeteria. Because the cafeteria was incredibly hectic, she had a hard time hearing what others say and asked them to speak as loudly as possible. The ability to advocate for herself in an effective way improved her conversational skills. She was very thankful for the experience and the solutions that were worked out. She spent the summer months exploring employment options for the blind and developing a partnership with a service dog at the Seeing Eye training center. The instructor named the dog Maxine and helped Haben leash her around the block. She thought the dog is amazing, although accidents happen sometimes as professionals warn it’s not safe for a blind person to walk with dogs rather than a cane. Haben was capable of having the strategy to train and harness Maxine properly at any place they went. They both went skiing together to build a loving relationship. 

She then applied to Harvard Law School where she studied to become disability rights attorney. Maxine was there with her. She introduced the dog to her fellow students in the university and they thought it was inspiring. At the beginning of her first semester at Harvard, they hired and assigned her the translators who were trained to communicate with her in classes through sign language and an FM transmitter system. Despite the communication barriers she faced in an educational environment, she designed and invented a Bluetooth keyboard connected wirelessly to the braille computer for people to type the conversation with her. The technology solutions reduced her isolation. After graduating from law school, she served as an advocate at the National Federation for the Blind. The organization has its ultimate goal in providing information accessibility and employment opportunities for the deaf and blind. Haben learned from her own discrimination how important her advocacy skills were to protect the rights that led to a successful and exciting career. She attended the White House ceremony to celebrate the 25th anniversary of the Americans with Disabilities Act. During this event she went on stage to introduce herself to the audience and meet other lawyers with disabilities. President barrack Obama gave his speech stating that an African American deaf blind woman has the right to be a lawyer and that all individuals with disabilities should have access to resources. 

I enjoyed the book I read and learned that deafblind people have success in their professional journey. Unlike most blind people, my eyesight doesn’t require braille. Instead I read and write in enlarged font as well as seeing things over short distances which I call sensory blindness or “low vision.” If I were like Haben, I would consider pursuing a guide dog to have companionship if the program can provide adequate training. The assistive technologies I used in the past have benefited my educational experience which has advanced my tools to develop skills in reading and writing. In recent years the counselor from the Office for Students with Disabilities at my community college has been helping to make course materials accessible. She communicates with the professors to plan accommodations to help me succeed in the designated environment. By the beginning of my first semester, I received an accessible tablet to make reading easier and faster. The device is called Prodigi Connect and it was purchased and received by the Maryland Division of Rehabilitation Services. 

Both Haben and I face similar obstacles in the way our deafblindness lacks accessibility. The part about her experiences at Harvard struck me the most because I’ve been thinking about transferring to UMBC to study to become a disability social worker. When I get there, I hope to receive the same opportunities to meet students with similar experiences. Like Haben and many others, I will continue to explore a range of options to figure out what I want to do. In my opinion, becoming a disability rights advocate with a degree in social work and a related field in law is absolutely a great career path to choose by any disabled individual. My personal plan is to always bring my iPad everywhere I go with a wireless keyboard for people to communicate with me. Also, I see myself making plans to travel around the country, places where I could attend conference meetings with advocacy organizations to learn about disability rights. If I do, someday I would be interested in meeting Haben and people in the organization she works for. Her story is wonderful, and I appreciate the ideas she has about creating a deafblind community that shape our culture. With her story fresh in the top of my mind, I’m going to use these ideas to help plan for my own future. 

If you are interested in learning more about her, click the links below to view additional information. 

https://habengirma.com/ 

https://www.amazon.com/Haben-Deafblind-Woman-Conquered-Harvard/dp/1538728729

Friday, May 29, 2020

Understanding Lifespan Development



You may already know what development means in terms of human beings that shape our lives. In general, development is the process of building personal freedom and capabilities that influence the well-being. The definition is simple, so you can recognize the meaning as “to create growth, progress, and capacity to change.”  Another way to define the term is to distinguish between a person’s state of well-being and the use of technical knowledge to meet the requirements for life. The key factors of development among humans include making choices of what to do in life, who to become, and how to control yourself over everything within the inside. People develop a wide range of experiences by constructing their knowledge and understanding of the world. It is important to note that there are millions of opportunities out there humans seek literally to perceive freedom and success in the course of their development, although not everyone has exactly the same freedom and capacity to turn toward life’s reality. Your brain and body both work together as a living organism made up of cells that facilitate growth and regulation of loss.  Psychologists use the concept to study how the brain grows and declines throughout the stages of life, identify positive and negative effects of development, and employ physical, intellectual, and socioemotional processes based on multiple disciplines. Scientific research exists worldwide since decades ago that played a critical role in determining the impact of life events on development toward social relationships. Developmentalists do their own research in a laboratory to collect information from participants about a problem before they truly make conclusions. For example, if you are a psychology major, you will need to take statistics and research analytics classes to learn the most accurate methods and steps to perform representative sampling for specific data about the problem.   This field of study helps students better understand the ethics of researching development to solve life problems. It still has challenges and complications, but it takes time and work to get familiar with the activity. Understanding development can make you an effective problem-solver while improving the lives of all individuals and their communities. This topic has gained interest in preparing for careers in education, childcare, counseling, social work, etc. Therefore, it is necessary to have a keen of knowledge and scope to support individuals who struggle to develop normally, because you want to be a good role model and have as much practice for your clients as possible. Advanced communication skills are important to serve the needs of people. Many colleges and universities offer undergraduate programs available for students interested in learning more about different approaches to development that apply to any career path they choose. Some professions require a master’s degree or higher depending on the field.

Lifespan development is a comprehensive approach that deals with changes in personal growth in different stages of life. It begins at birth and continues until old age. We can call it a “life cycle” as it goes through a lifespan, which describes the number of experiences that affect an organism’s perceptions at each developmental level. Positive changes occur when a person maintains physical and cognitive functioning at any age, so if you have good health habits because of less stress and how physically active you become, you are probably aware that these factors of development can lead to a longer and healthy life. If you are socially isolated or abuse alcohol and other drugs, it puts you at increased risk of developing poorly as you get older. Socioemotional development includes engaging in secure relationships with others that have a positive impact on the lifestyle. Children living with families with clear expectations and guidance from their parents become satisfied with their lives as adults. Those that receive emotional support of parents and friends develop high self-esteem which motivates them to become socially competent in peer relations. All children need socialization in school, at home, and activities. As a developmentalist, it is important to figure out ways to handle the situation people face at the meantime using effective coping strategies. For example, you could recommend a child with emotional problems to get into special education where teachers can promote an environment that is appropriate for their learning and developing adequate social skills with facilitation.

Cognitive development refers to the ability to learn, think, and reason; whereas physical abilities include motor development and sensory functioning. Children begin developing language perceptions as they learn to read and write. As preschoolers and kindergarteners, they establish friendships with other children I the same age to achieve basic goals as they mature into future relationships. Those who obtain support from parents and teachers are most likely to become independent and satisfied with their lives than those that don’t. As children grow older, they are encouraged to overcome the challenges in academic achievement by mastering the skills needed to meet the requirements of the curriculum, such as reading, math, English, and science.  As a result of doing well in school, they are allowed to manage the activities that give them an opportunity to be active and form social networks with others engaged in similar tasks.  A perfect example includes joining a club or sports team, these physical activities provide individuals with interpersonal skills to cooperate with one another. 

Erik Erikson

 One of the most popular developmental theories studied worldwide is Erik Erikson’s psychosocial development. This theory is often viewed as an argument against Freud’s idea of psychosexual development, emphasizing that people go through eight stages of life rather than what he previously believed. In fact, Erikson states that an individual completing each stage successfully and virtually has a positive outcome on personality development at any age. Psychologists analyze and apply the theory in their perspective to examine the balance between personality traits and changes in individual experiences. Below is a brief description of Erikson’s stages of psychosocial development listed in correct order:

1. Trust vs. Mistrust

This is the first stage of Erikson’s theory that lasts for about one and a half years after a baby is born. During this stage, an infant relies on consistent care of parents and other adult relatives. Developing a sense of trust is an important ingredient in early infancy toward the support of caregivers. If an infant is securely attached to a caregiver, he or she experiences virtue of hope that people will be there as a prevalent predictor of positive relationships with others. Sometimes infants cry when being left alone and may require trained babysitters to care for them ahead of parents’ work schedule. Secure attachment of responsible adults can improve an infant’s temperament and ability to soothe themselves before transitioning to the second phase of life. If the care they receive isn’t consistent enough, mistrust occurs dramatically that will lead to fear or loneliness.

2. Autonomy vs. Shame and Doubt

This second stage of development begins at two to three years of age. Children are encouraged to explore their abilities to acquire independence and self-control in which they develop physically. The parental roles involve helping children learn to take care of themselves and make choices about activities they enjoy doing. During this stage they assert their independence and strengthen motor skills to increase control of their movements. Effective strategies of developing a sense of autonomy include walking on their own, putting shoes and socks on, and picking up toys to play with. The failure to achieve physical abilities is associated with low self-control and a sense of shame and doubt.

3. Initiative vs. Guilt

Erikson’s third stage of psychosocial development lasts between 3 and 5 years of age. Children learn to assert themselves more than ever before. During this stage they plan and initiate activities, ask questions about what they need and want, and have opportunities to interact with other children. As the knowledge progresses, they make up mistakes that determine the consequences of his or her behavior.  While attending preschool they establish morality by following the rules explaining what is right or wrong. If a parent or teacher becomes angry with what children have done unethically, it may cause too much guilt and they feel overwhelmed for being a nuisance. In order to reduce the feelings of guilt, it is important to treat kids the way they want to be while taking advantage of the questions they have. Having a virtue of purpose allows for a positive balance between initiation and guilt in completion of this stage.

4. Industry vs. Inferiority

At this stage, children learn specific skills to accomplish things. It occurs during middle and late childhood (5-12 years) when they develop competencies to achieve a sense of industry. They spend more time in school and away from their homes. The cognitive development in middle childhood is characterized by learning to read, write, and perform operations. Children begin to develop language abilities to increase the level of comprehension. Self-esteem is frequently a valuable source of competence developed throughout this period of time as a result of becoming confident.  Establishing close friendships are also vital to all of us that involves providing social support to enhance self-esteem. The concrete operations are performed logically with specific skills that give them a virtue of competence. In contrast, if a child has not developed these skills to achieve the goals, inferiority occurs as he or she fails to learn what is required to meet the values of society.

5. Identity vs. Confusion

According to Erikson, the transition from childhood to adulthood is completed through the development of a strong sense of self. Individuals compare themselves to others in acquisition to virtue of fidelity. It takes place in between 12 and 18 years of age. Although teenagers may feel insecure about the new experience; those that complete this stage successfully have the ability to explore their independence and make decisions about their future upon graduation from high school. Adolescents experience physical changes as they mature into emerging adulthood, having an influence on height, weight, sex hormones, and gender.  Cognitive changes include abstract thinking and knowledge of the world that lead to increasing levels of intelligence. The achievement of personal identity involves reinforcing the sense of self and committing to a path that interests an individual. High school students form genuine friendships, are sexually active, and participate in many social activities, otherwise role conflict can occur more frequently due to a steady balance between employment and studying.  Deciding on what you want to accomplish with the rest of your life is the main goal of teens to get ahead of their time. This stage of development is significant because it prepares you for the transition to college education and professional development by improving specific skills while seeking career opportunities to be successful. It means that people grow up very quickly and are getting ready to move away from their families to live their own lives and start new careers at age 18 or beyond. The failure to develop identity is a risk factor of becoming confused about themselves and it can cause serious consequences on what will happen in later stages of life.

6. Intimacy vs. Isolation

The sixth stage of development begins at age 19 and continues until the late thirties. The goal of young adulthood includes engaging in intimate relationships with others. It is possible that conflicts may occur when people don’t feel right about the partners they previously dated. However, they must be resolved using positive coping strategies to maintain a sense of intimacy. Love is a major source of intimacy by which an individual shares his or her private thoughts and feelings toward one another. Whether a couple is married or cohabitate, both individuals live together in the same household for a specific period of time. It is important to understand that the partner wants to be shown respect and kindness so you both get along. According to Erikson, this stage plays a key role in developing close connections that embrace an individual’s socioemotional aspects of life with the support of others. Failure to succeed in this stage results in isolation and loneliness. That’s why learning how to resolve all conflicts effectively can help keep the relationship smooth and fulfilling.

7. Generativity vs. Stagnation

Erikson’s seventh stage of development typically lasts throughout the 40’s and 50’s. During this stage, individuals become fully mature and create contributions to society as a major benefit on a younger generation. Being involved in the community is important to achieve a sense of generativity including helping others and serving as a leader of an organization. They raise and guide their children to develop while focusing on career accomplishments. Despite the developmental changes exhibited in this phase, adults try to be physically active by engaging in many leisure activities that improve their body functioning and reduce stress associated with aging effects. Middle-aged adults are both parents and full-time workers. Although conflicts may occur at some point due to demanding routines in career and family life. In the stage of generativity adults need to be creative and productive in fulfilling their accomplishments to bring contributions to the community. Failure to complete this stage leads to developing a sense of stagnation; consequences include being inactive, uninvolved, and delays in meeting the needs of other individuals of future generations.

8. Integrity vs. Despair

Erikson’s final stage of development begins at age 65 and ends at death. It describes a person reflecting on the past as aging progresses through the rest of his or her life. Individuals go through late adulthood successfully by achieving acceptance of how well they have lived. Grandparents retire and spend leisure time with their middle-aged children and grandchildren to stay active as a common sign of wisdom. Those who achieve a sense of integrity are able to recall themselves as leading successful and productive lives. Older adults that have achieved both intimacy and generativity over the past 45 years usually develop expert knowledge of their experiences in the workforce, relationships, and family life. Aging is a significant approach to human development that deals with the decline of physical and cognitive functioning when people get old. Three types of aging include successful, normal, and pathological.


 So, what did you learn about Erikson’s stages of development? Which of these do you find interesting? This most popular theory shown above is an example of how humans evolve over a lifetime, and what must be done to achieve personal growth in different phases of life. Everybody has to work hard not only to develop normally but also to become a successful individual. The best way to do so as children would be for parents and teachers to teach them all the skills they need to reach the goals such as being socially active and making good choices for themselves and others. It is important to consider the advantages and disadvantages in the process of development that people exhibit during each stage. For example, if someone has special needs, reasonable accommodations must be made appropriately to promote further success in all kinds of things that typically developing individuals do.  Some children and adolescents have difficulty processing information from class materials and may require the use of adaptive equipment and other accommodations registered by the special education department. Every individual is required to attend school and learn about the world as part of developmental experience. There are always opportunities to learn and of course, ask as many questions as possible about stuff you’ve never heard of before. Reading all the time can help, but also education is the biggest priority to enhance plasticity and make life interesting. Another important aspect of education is peer relations. Children build friendships with others to gain social competence.  Schools provide social activities that help children cooperate with one another to develop communication and leadership skills. As a result of becoming socially active that remains throughout the lifespan, individuals are likely to have positive romantic relationships and work experiences. Depending on how well people have gone through various levels of development, they can still have goals and opportunities to accomplish in life. Most of us go to college, hold well-paid jobs, live independently, and start a family.





Tuesday, March 24, 2020

My Life - An Update



First of all, it is my second year of college and I’m getting excited to explore pathways that will lead to a successful career. Now that I’m in a quarantine period following the novel coronavirus outbreak, I wanted to share with you a wide variety of perspectives related to the fields of study that interest me the most, by specifically applying topics I’ve learned from my classes to what I’m planning to accomplish in the next several years. The purpose of this discussion is to explain how I will use my knowledge of social, psychological, and environmental factors of human development to make the world a better place for everyone and the relationships among individuals and their communities.  The information below proposes significant objectives and steps I will take to help individuals cope with widespread challenges in their lives as a key to improving their attitudes toward developmental conditions with positive changes in ways people react to social behavior. 

I learned from my psychology classes that development occurs throughout the stages of life as we experience changes to physical, intellectual, and socioemotional factors, beginning in infancy and continuing throughout our lifespan. I am deeply interested in discovering how the mind works in terms of positive and negative aspects of development, especially the inheritance of natural talents and personality traits, life events that trigger emotional regulation, coping with stress, and the capacity to learn and change over time. Social interactions with peers and adults are a major achievement of all children, as they learn the skills necessary to develop positive relationships with others, no matter how they differ from one another. I strongly emphasize that individuals who seek social support from peers and relatives are more likely to experience less stressful situations and have high self-esteem than those that don’t. In my opinion, peer interactions should be developed by children with special needs in inclusive schools with facilitation from special education teachers and speech/language pathologists as well as personal aides and sign language interpreters for the deaf.  As a child, my school provided me with opportunities to participate in many classroom activities and build friendships with other children in the same grade, despite my deaf/blindness.  My aide was able to dictate the conversations to ensure we understood each other. Someday I hope to conduct research studies with a team of colleagues to determine the strength of the relationship between peer support and inclusion among children with and without special needs. I see myself conducting the type of research that analyzes data about how caregivers and special education teachers facilitate peer communication among children with special needs.

       I am also interested in helping families of low-income children obtain temporary assistance from programs offering free services that give them access to quality care and education. My focus may include scheduling client appointments to discuss options based on their individual status. For instance, I could advise families of children and adults with disabilities about resources they could access and request funding for support services to maximize their independence. I have also been considering additional positions in contribution to my career that help clients make decisions about their future to achieve the goals and solve problems including consulting and life coaching. These professions take place in a one-on-one setting (either online or face-to-face).

        My next goal in making life better for everyone would be to support community development with opportunities available for residents to integrate into society.  My intended focus would be inclusive education, adaptive recreation, social services, and equal rights of all individuals from diverse backgrounds such as race, gender, religious beliefs, socioeconomic status, and disabilities. In this approach to building an inclusive community, my goal is to work with state and local agencies to create new laws that protect individuals with disabilities, mental health disorders, and income inequalities from discrimination. My hope is that one day I will serve as an advocate for the disabled. I would provide dozens of resources to help disabled residents become independent in the community, such as public transportation with wheelchair lifts, employment centers, accessible housing, and therapeutic recreation departments.  Part of this would include architectural consultation work to help design and construct new houses and apartments with large spaces to be made completely accessible. I hope to also work to create adaptive sports and activities for the physically handicapped to become active in various settings, because most adaptive activities do not take physical disabilities into consideration.   My plan is to present my ideas to school districts and county councils on how to make playgrounds safer and more wheelchair-friendly, improve regional parks and sporting leagues like basketball and soccer, and start adaptive swim teams with pool lifts in place. I also want to be in charge of the program that offers counseling services available for people with psychological disorders.
       My other objectives may involve helping high school and college students with special needs make transition plans towards graduation by seeking resources to become successful.  The rest of my career accomplishments I’m interested in include providing effective caregiving services for individuals of all ages who need them.  I want to be able to help the poor get free child/healthcare and find the right people to work for them that fit their specific needs.



Saturday, January 18, 2020

Stephen Hawking - an inspiration


      One of the most famous scientists in the world, Stephen Hawking, is a significant inspiration for people with disabilities who have the dreams in creating a successful life. I’ve been interested in learning all about him and comparing his life to my journey with a degenerative disease. The information below describes some of what I learned about him, as well as examples of the important things that happened in my life and what I want to accomplish in the coming years.

      Stephen was born on January 8, 1942, and he grew up in the United Kingdom during the time when the Soviet Union invaded Poland in the wake of World War II. His family lived in a safe environment on the north side of England, which protected them from an aggressive military held in other parts of the continent. He had three siblings named Edward, Phillippa, and Mary. He then moved to St. Albans at the age of eight, where he attended school while his father worked as the director of the National Institute for Medical Research. In comparison, my parents bought a nice house in a rural town located farther away from the city before I was born which I have lived for a long time and became part of the mainstream society. In comparison to Hawking, I have a younger brother and a sister, Allison and Ryan, who remain closely related and we all enjoy spending a lot of leisure time together. I learned from the book explaining how important it was for Stephen to be with his family members who supported him and it made him feel grateful for them. He and I both received public education with similar opportunities to participate in student activities and programs that encouraged them to develop social skills and career interests. When I was in high school, I joined the Allied Soccer League, the Forever Friends Club, and the drama program for students with and without special needs, which helped me to connect with my peers and work closely with them. I also became a member of the Camp Inclusion Board and it got me interested in a career position in working with children and adults with disabilities to improve their lives. According to Stephen Hawking, he enjoyed spending time with friends and playing games just for fun. As a teenager he became interested in the field of physics and mathematics so he decides to begin conducting scientific experiments as a strategy to form his own theories. Because of his higher IQ, he studied hard at St. Albans High School which impressed his teachers. After graduating from high school, he attended Oxford University to earn a bachelor’s degree with honors in physics; however he still didn’t know what he wanted to do. He then went on to Cambridge University to pursue a doctoral degree in physics and became professor of mathematics. My dream would be to transfer from community college to the University of Maryland Baltimore County (UMBC) to complete a degree in social work while preparing for the workforce through internships and professional training. In comparison to Oxford and Cambridge, UMBC is and honors college, and one of the most rigorous and challenging schools to get into, requiring good grades and higher academic achievement.

     Stephen Hawking was diagnosed with ALS when he turned 21, which stands for amyotrophic lateral sclerosis. It is a progressive form of motor neuron disease that causes permanent damage to nerve cells in the brain and spinal cord. He was told by doctors that he only had two years to live, however he survived much longer and lived until the age of 76.  Shortly after the diagnosis he ended up in a wheelchair for mobility that allowed him to move freely without risk walking. He also lost his ability to speak during his trip to Geneva due to his illness, and they put on a ventilator to help him breathe. The condition he had made life challenging. One time he met an engineer, Dennis Klatt, who designed and built a computerized system to translate text to speech, with a sensor attached to his cheek so he was able to communicate by typing on the computer without using his hands. The invention gave him the freedom and joy to communicate again with his family members and colleagues. As for me, I was diagnosed with RTD in 2014 and riboflavin treatment was prescribed to stop my conditions from getting worse. I am very lucky that my life expectancy remains normal as long as I keep taking riboflavin and other mitochondrial support medications. My disease generally affects cranial nerves resulting in related symptoms such as sensory hearing loss, visual neuropathy, and physical limitations. These symptoms have some similarities and differences to ALS, but they are much less severe than Hawking’s. I feel so grateful that I can breathe normally without needing a ventilator, which many people with RTD must live with. I was only a child when I lost my balance and my muscles got weaker over the years. I used assistive technology in school to make reading and communication easier. As I got older, I decided to create a new way of communicating with others directly in order to avoid being frustrated when things cannot be heard over long distances like lip reading and. Now I am currently using an app on my iPad called Live Caption and it works pretty well by recording the conversation from speech to text. It was one of the positive solutions I’ve found available to me, otherwise there may be other technologies that will one day be available to make life better for me. 

     Hawking was a social guy, and people knew he had a wonderful personality with a great sense of humor. He made many friends who took the time to understand his disability and learn about his scientific ideas.  In relation to my own life, I have gotten to know a lot of people at school and in the community. I always feel a little shy at first until I get used to talking to them and making sure they understand me clearly. While Hawking played games with his friends, I participated in sports and theatre and hung out with peers. During his freshmen year at college, Hawking found himself isolated so he struggled to seek ways to be social, thinking he would enjoy rowing and parties. Now that I’m currently a college student and I haven’t yet had a chance to get involved, my goal is to start a club and join a dance program that will enhance my social life.

     Stephen Hawking met his wife Jane at a party.  As Hawking's condition worsened, she became both his wife and caretaker.  He never discussed his disability much in his relationship, although he relied on her to help him with things when his aides weren’t with him, including pushing his wheelchair, typing papers for his work, and taking him places.  Doing so was her main challenge in their marriage, but she promised to do whatever he asked her to accommodate with stuff that was important to him.  They had three children; Robert, Lucy, and Tim. Because of his health issues, Jane Hawking was able to obtain government funding for support staff at home so she was happy to have him stay with her instead of sending him to a nursing home.
    After his 30-year marriage to Jane, the couple divorced and he took Elaine Mason as his second wife.  Elaine was one of his registered nurses who took care of the ventilator and other health-related needs. Like Hawking, Marriage and family are my greatest dreams besides having my own wheelchair-accessible place to live with assistance from neighbors and staff so I can be just like everyone else.

   Stephen Hawking was best known for his work on black holes and contributions to cosmology and gravity. He wrote several books based on his knowledge of these disciplines. The Brief History of Time and The Theory of Everything became popular to readers who wanted to better understand the interconnection between physics and mathematics in theoretical ways. Hawking was also an advocate for the equal rights of the disabled, by ensuring that public buildings and college campuses are made accessible for those in wheelchairs and other handicaps. As a graduate student and professor at Cambridge, the administrators and architects followed Hawking’s instructions and they all agreed to provide campus accessibility with ramps and elevators to make it easier for him to get around. He traveled around the world to meet with other scientists and share his theories of the universe. After he lost his speech, he was able to communicate through a computer for teaching so it didn’t interrupt him from doing the job.  The operating system worked really well which showed signs of further progress in his work on the sensor that acts as a voice. Creativity and self-advocacy were his two strategies that gave him the power to succeed in his career and personal life along with reasonable accommodations. To be honest, I try to always stand up for what I need to overcome and be more adaptive like he did.  I am always making sure that my college is offering proper equipment for the blind or visually impaired students planning to take classes there.  I’ve been interested in becoming an advocate too and working for agencies and self-directed services to support the poor, elderly, mentally ill, and people with disabilities. I also hope to travel all over the country to attend conferences and meetings for work. Following Stephen Hawking’s communication barriers, the best way I can handle the situation would be to record formal conversations using modern technology that I bring everywhere. Technology plays a huge role in my life, which has increased my ability to access materials other than communication especially for reading and writing.  I want to consider writing tons of blogs and magazine articles on specific topics related to the fields of social work and disability studies. For example, I’m hoping to write something about the role of self-advocacy and why it is important to us.

     These are the key points from the story of Stephen Hawking’s life. In conclusion, the purpose of the discussion is to help you understand how inspiration influences individuals with disabilities who wish to create their own success by comparing themselves to each other with similar challenges and experiences. The truth is that people can do whatever they want to accomplish as long as they work hard and have the same legal rights. Most importantly, anyone who faced various physical challenges but with normal intelligence (like me and Hawking) must learn to adapt to their environment and declare their rights, by figuring out what works best for them. Being a good self-advocate generally means taking responsibility for what you need or want! That’s what I’m trying to explain about helping disabled individuals prepare for their future once they graduate high school and college. Keep in mind that Stephen Hawking worked hard to achieve the goals that led to a successful life. Now it’s time to start thinking this way, and his story involves a powerful influence on society. I hope this discussion will raise awareness of what disabled people like about themselves and what they want to accomplish over the course of their lives.

     If you are interested in learning more about this man, visit https://www.biography.com/scientist/stephen-hawking


Monday, June 3, 2019

Life as a College Student

I recently completed my freshman year at Howard Community College, which I began the fall of 2018. Now it’s time for me to reflect my personal experiences in higher education by explaining what life is like as a college student with physical challenges and how I could overcome them. This year has been an introduction to the next chapter of my life as a young adult, which basically started me on the journey to achieve my goals for the future. I’m a Social Sciences major and I’ve managed to explore a wide variety of disciplines associated with the fields of study that is of my interest including sociology, psychology, social work, and public health.

I learned over this past year that higher education is generally is a valuable experience for students with disabilities who wish to have a successful life regardless of their academic achievement. However, it can also be a challenging aspect of their lives as well as the ability to learn and pursue career goals.  A couple of years before graduating from high school,  my parents and special educators worked hard to prepare for the transition by ensuring I had the adequate access to resources that helped me become successful and independent.   Once I enrolled into HCC, I found it difficult at first because most of the resources I depended upon in high school were no longer available to me. As I waited to start classes, I had to spend many months searching for a one-to-one aide to go with me for physical assistance and help with communication.  After a lot of searching, my uncle decided that he would get certified for our companionship since he enjoys helping me do lots of things and we have a lot in common. For example he was able to transport me to and from campus via car instead of having to call for public transit. He stayed in class with me for the whole time just for safety and to ensure everything went okay. I took the total of two classes during each semester, one online and one on campus. This means the load was extremely low because off of my classes involved an intense amount of reading and writing (it takes me longer to get all the work done due to my vision loss.)  We also found out that many of the things used in college for educating, such as their online math program, are not accessible for people who are visually impaired.  This has put my math class on hold until they can figure out a way to make the material visually accessible for me.  I also discovered that community college relies mostly on group work, rather than lecture and independent study.  This made my classes even more challenging, since many of the students were not able or willing to speak in a way I could hear them during group discussions. I had to change one of my classes to an online format for this reason, so that I could do discussions online where I could read what people had to say.

Another problem I found was the lack of social opportunities at the community college level.  I rarely made any connections on campus and I don’t have close friends there either, but I sometimes attend plays and musicals that take place at night. Even though college life is generally different from high school, I understand that many students view getting involved on campus as dis-interesting and forgettable, and focus more on homework and studying than making friendship The best thing about HCC is that the class sizes are generally small which allows me to get to know the professors and ask them questions at any time before or after class. The campus is fairly handicap-accessible which makes mobility easier for me to move around to get anywhere safely using a wheelchair.  When I’m in a classroom full of twenty students around me, it usually gives me more individual attention and accessibility on information processing. The professors tend to be very accommodating and really great at helping me succeed. At the beginning of each semester it was hard because they didn’t know much how to modify any materials that were already inaccessible, so I worked with a disability service coordinator to figure out what accommodations are reasonable to reach a solution. The first thing she did was by communicating with my professors to introduce me and explain my needs in simple terms so they could better understand the best way to create accessible content.  I was then assigned a transcriber who is trained and uses a computer to take notes for me as I followed along with the class. I also received copies of the materials with enlarged print including transcripts of the videos and textbooks to help me organize the content and study for tests. I have had the struggles with comprehension at times when the content was written abstractly, so I tried reading the same thing multiple times to understand the text. It’s definitely one of the most powerful techniques for every college student to acquire in order to improve their thinking. I learned a lot from the coursework and both sociology and psychology are interesting fields of study. It made me wonder if I could consider earning either a bachelor’s or masters degree or both, that would lead to a career position in helping people with disabilities. I used an iPad as the main technological device in the classroom to facilitate communication during lectures and group discussions. 

Everything I have done so far has resulted in a positive learning experience which motivates me for achieving these goals. I finished my first year at HCC with a 4.0 GPA, which I am very proud of.  It has been a busy year ahead for me and I’m hoping to have a relaxing summer before continuing my education.